Sarabi Posted February 3, 2015 Posted February 3, 2015 ...wrote down these babies births. And whispered as she closed the book "too beautiful for earth" Am wondering if I can get people's opinions, thoughts or otherwise. Or if anyone has been through this. My cousin and his girlfriend had a baby in October 2013. Unfortunately, due to a genetic condition(a mitochondrial disease), the child deteriorated quickly and passed away at 7 weeks old. We were all upset, naturally. There was nothing anyone could do and the situation was very sad. The funeral was in January 2014. We were not surprised to hear that in March 2014, the girlfriend was pregnant again and the second baby, was born in December 2014. Well, I guess fate(or nature or whatever) dealt a cruel hand because this child, also has the same condition and has been unwell in hospital for a couple of weeks. Now we are waiting for the inevitable I feel it is a bittersweet time. A new baby at the end of last year...but now these tragic circumstances at the start of the new year. On a personal note. I am a mix of upset and annoyed. Sad for the couple, to be going through this again in such a short space of time. Its just too much. Sad for the child. I cannot bear to hear about children suffering, they do not ask to be born and as adults we have a duty of care to all children to do our best for them as much as possible. I am also somewhat annoyed at the couple, for various reasons. One being that I wish they had not proceeded so hastily to have another baby without grieving fully for the previous loss and also for not investigating fully with doctors or specialists to determine the likelihood of this happening again. It sounds as if I am blaming them. I am not because thinking about it deep down, I guess they were not thinking too clearly and felt that another baby would help them in their grief by replacing what they had lost. Anyway. I have visited with them this weekend and last weekend and seen the baby, who is currently stable. I did not want to stay too long at home because I do not wish to spend all of my time sad and depressed over this situation, where we all feel so helpless. Although I guess my family (well my mum) probably feel we should be spending as much time as we can get with the couple, I feel it is somewhat unnecessary. They need their space to spend time together as a family. It is good to support but not suffocate. They have now moved out of hospital to a more comfortable space as the baby seems to be ok for now. The next few weeks, we will be taking things as they come. I have mixed emotions surrounding the whole thing which may make me sound insensitive...however, this is largely for other reasons. As always, thanks for listening loveshackers 1
Haydn Posted February 3, 2015 Posted February 3, 2015 I have some good friends, i`ve known all my life. They had tried 3 times. First 2 babies were born with no hope. Blind, some terrible deformities. `Emily` and `Ruby.` Those tiny lives lived for 4 weeks. 3rd baby, `Adam` is now 12. Emily and Ruby still have their birthdays and Adam has 2 older sisters he got to know through his unfailing parents. 2
Author Sarabi Posted February 3, 2015 Author Posted February 3, 2015 Awwww bless so these parents were able to experience joy eventually after enduring so much sadness. Its not easy at all. They did celebrate the first baby's birthday. And just like your friends, both the babies are girls. I would hope though that with all the advances in medicine and science, whilst there is no cure, my cousins would seek specialist assistance for the future. Rather than take another gamble... Perhaps the MP's vote for three parent babies might come into effect for them and be successful. Who knows... 1
Haydn Posted February 3, 2015 Posted February 3, 2015 Awwww bless so these parents were able to experience joy eventually after enduring so much sadness. Its not easy at all. They did celebrate the first baby's birthday. And just like your friends, both the babies are girls. I would hope though that with all the advances in medicine and science, whilst there is no cure, my cousins would seek specialist assistance for the future. Rather than take another gamble... Perhaps the MP's vote for three parent babies might come into effect for them and be successful. Who knows... I saw this today. I hope so.
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