annieo Posted May 31, 2009 Posted May 31, 2009 My son (12) has had microscopic blood in his urine, discovered at his yearly check up last October. Not frank, which means you can't see it, but follow up visits to his pediatrician have shown that it hasn't gone away. Otherwise, he is a healthy, thriving, eating and growing boy (my height 5'6" tall for his age) At a visit about 2 months ago, his doctor referred him to a nephrology clinic at a local hospital. His first visit is on Monday. Total shock. I am freaking out. The one thing that his doctor mentioned as a possible cause is Ida nephropathy, which, from what I've scoped on the internet, goes away in 75% of the cases, but in the other 25%, turns into kidney failure. And transplants only work temporarily, because eventually the disease returns to harm the transplanted kidney. It's an auto-immune thing. And I don't know if that is the cause, it's just the one thing the doctor mentioned. I'm just working out worst case scenarios.
Lucky_One Posted June 1, 2009 Posted June 1, 2009 (((((annieo))))) (((((son)))))) I hope that everything goes well on Monday. There is nothing scarier than thinking that there is something seriously wrong with your child. I will send some warm healing thought his way!
Trialbyfire Posted June 1, 2009 Posted June 1, 2009 I'm sorry to hear this. My fingers are crossed, that it's part of the 75%, where it will eventually go away. Have faith! ((hugs))
Lucky_One Posted June 1, 2009 Posted June 1, 2009 Annie, do you have an update? Was thinking of you today.
Author annieo Posted June 2, 2009 Author Posted June 2, 2009 Well, the first visit with nephrology was today. My son was pretty nervous (as was I) but we got through it. They are going to do a series of blood tests. His BP was normal, but he still has the blood and trace protein in his urine. The most likely cause is IgA nephropathy, which is an autoimmune disease. Has a wide spectrum of manifestation, from benign to eventual renal railure, but at this point, he's healthy and the doctor didn't think there would be a biopsy. This could change due to either blood test results or changes in his health. So now we wait. Follow up visit in 6 months. If there are issues with blood, they'll be in touch. Otherwise, back to the hospital in December. The hospital is for children, and my god, what an amazing but sad place. We had lunch in the atrium, and saw kids all swollen up, due to chemo or kidney problems, a little girl (8ish) walking by in a nightie, with IV and no hair, looking very pale. It was a difficult day for both of us, but for now, no catastrophe. Thanks for the kind messages, thoughts. It means a lot to me
Lucky_One Posted June 2, 2009 Posted June 2, 2009 Fingers crossed that this resolves and is not the IgA nephropathy. Children's hospitals are very hard to deal with, when you walk in with questions and fears. (((((Annie and son)))))
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